Cystic Fibrosis Trust
What is Cystic fibrosis?Cystic fibrosis (CF) is one of the most common genetic conditions affecting more than 10,600 people in the UK which approximately half of are aged 19 or under. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing. It is usually diagnosed during newborn screening, which is carried out as part of the Guthrie heel-prick test that all babies in the UK receive, and positive results are followed up using a sweat test.
Cystic fibrosis causes the body to produce thick mucus, which can have a wide range of effects that create many complications and stress on internal organs. It is vital that people with CF receive appropriate treatments to enable them to live longer, healthier lives. The treatment can take many different forms but mainly require daily medication, physiotherapy, nutrition management and exercise!
The Cystic Fibrosis Trust
The Cystic Fibrosis Trust is the only UK wide organisation supporting people and families affected by Cystic fibrosis. They fund cutting edge research into new treatments and provide services to people and families affected by CF, work closely with the clinical community to improve the quality of care, and campaign for equal access to the latest treatments. The true mission is to create a world where being born with CF no longer means an early death or a lifelong burden of care.
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